Finding specialized care can be a years-long process for patients with serious, complex and rare diagnoses, worsening outcomes by delaying time to treatment. Patients with rare diseases often see multiple providers before securing a diagnosis, some even visiting five or more hospitals before getting an answer – and some waiting more than five years to get that answer. Whether they are patients searching for tailored expertise or are ones that simply need to switch doctors, their searches can be lengthy and difficult.

However, now there are digital tools that can play a key role in connecting patients to the right specialists and the innovative treatments they need.

Download the infographic that explores what these patients experience and outlines how digital tools can help, including how they can:

• Narrow the initial search for a healthcare professional.
• Identify healthcare professionals with the required expertise.
• Empower patients through tailored resources.

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